Hope. It’s a little word that makes a big difference.
Hope. I remember the day I lost it – sitting in a rheumatologist’s office.
Hope. I remember the day I found it again – lying on my couch exhausted and in pain.
Hope. It can mean the difference between life and death.
I saw the death of my dreams and plans for the future that day, in the rheumatologist’s office, when he confirmed the diagnosis of fibromyalgia, and told me there was nothing I could do but learn to live with it. He told me there was no hope for recovery and I accepted that, for a while.
My life began again the day I decided I was done letting fibromyalgia control my life. I was done accepting that what I could do with my life was determined by a diagnosis. I didn’t know how, but I knew I had to claw my life back. I gave myself hope that day.
I spent as much time as I could manage – often only a few minutes at a time at the start – searching the internet for stories of recovery, treatment options, exercise programs, supplements….and day by day my hope grew. I didn’t find a lot of information, or stories of recovery, but having hope of a better, happier life drove me to keep looking.
I didn’t find a ‘recovering from fibromyalgia’ manual telling me what I needed to do, but it didn’t matter. Whenever I found something, anything, I gave it a go. I figured, what have I got to lose – it couldn’t get any worse.
The best thing about hitting rock bottom – and boy do I know about hitting rock bottom – is the only way to go from there is up. And up I went!
I went from a miserable life of pain and fatigue, and raising my children from my couch, to the life I always wanted. That is the power of hope.
Last year a friend of mine asked me if I could write some suggestions down for a friend of hers, who had just been diagnosed with fibromyalgia. Guess what her doctor had told her… Yep, she was told she’d have to learn to live with it. Seven years after I was diagnosed, and doctors still can’t give their patients any hope for recovery from fibro.
I sat down to write a few dot points, and pages of words poured out of me. I wanted so badly to let this woman know that she had options, and that she could claw her life back from fibro.
After that, I felt the need to give more people options and hope for recovery. That’s how I ended up writing a book about my recovery from fibromyalgia. I didn’t write it to make a bunch of money, or because it was on my bucket list. I wrote it simply because I want others to know that they can get better. To know that they can get so much better, and that they don’t have let their dreams die because of their diagnosis.
Please share this page and help me spread the word: There is hope for recovery from fibromyalgia.